5th Annual Congress on

Rare Diseases and Orphan Drugs

Theme: A step towards advancement in the research and treatment of rare diseases

OCM for Rare Diseases Series Conferences

Organizing Committee - Rare Diseases 2016

OCM Member

Daniel Cohen

Chairman
Pharnext
France

Biography Research Interest

OCM Member

Serge BRAUN

Scientific Director
AFMTelethon
France

Biography Research Interest

OCM Member

Stephen P. Arneric

Executive Director
Critical Path Institute
USA

Biography Research Interest

OCM Member

Stephen B. Shrewsbury

Executive VP, Development & CMO
Fortuna Fix
USA

Biography Research Interest

OCM Member

Amrik Sahota

Professor
Rutgers University
USA

Biography Research Interest

OCM Member

Pat Furlong

Founding President and Chief Executive Officer
Parent Project Muscular Dystrophy
USA

Biography Research Interest

OCM Member

Annemieke Aartsma-Rus

Professor
Leiden University Medical Center
The Netherlands

Biography Research Interest

Organizing Committee - Rare Diseases Congress 2017

OCM Member

Nadia Annitia Ameen


Yale University School of Medicine
USA

Biography Research Interest

OCM Member

Abdulaziz Aldawood


King Saud Bin Abdulaziz University
Saudi Arabia

Biography Research Interest

OCM Member

Weida Tong


Division of Bioinformatics and Biostatistics, FDA
USA

Biography Research Interest

OCM Member

Joseph Ndung u


FIND’s Neglected Tropical Diseases
Switzerland

Biography Research Interest

Organizing Committee - Rare Diseases 2017

OCM Member

Romina Ortiz


Rare Genomics Institute
USA

Biography Research Interest

OCM Member

Harsha Rajasimha


Organization for Rare Diseases India
USA

Biography Research Interest

OCM Member

Amrik Sahota


Rutgers University
USA

Biography Research Interest

OCM Member

Jacques Tremblay


Laval University
Canada

Biography Research Interest