Collaborators

Organization for Rare Diseases India aims to empower patients and families affected by rare diseases with access to national and international resources to improve their quality of life. We strive to catalyze the rapid development and delivery of affordable diagnostics and treatments for rare diseases through innovative collaborations and partnerships among stakeholders for the benefit of patients. Hosting public awareness events, raise and distribute funds to support education and health of patients, creating and maintaining patients registries, facilitating scientific research, clinical trial participation of patients and patient advocacy are some of the ways in which we support the cause.