Alba Ancochea
EURORDIS (Rare Diseases EU) and FEDER (RD SP), EU
Biography
Alba Ancochea is the CEO of Spanish Federation of Rare Diseases and its Foundation. She is a EURORDIS board of Directors member , as well as member of the Rare Diseases International Advocacy Working Group, member of the DITA (Drug Information ,Transparency and Access) Task Force, representative of the Council of National Alliances and supporting the Ibero-American Alliance of RD. She belongs to the CIBERER (Spanish Biomedical Research Consortium on RD )Scientific Advisory Board. She has completed undergraduate and masters studies in psychology, special needs teaching and management of NGOs.
Alba is a graduate of the EURORDIS Summer School and EUPATI expert training course among other qualifications. She represents PLWRD in a dozen of Work Committees and national and international projects regarding National Strategy, Centers of Expertise, access to Orphan Medicinal Products, treatment and research on RD. She is also teacher in Socio-Health Masters and other courses related with RD.
Abstract
Abstract : Measuring the impact of Diagnosis and Treatment of Rare Diseases