Rare Diseases and Orphan Drugs

Nursing and Rare Disease

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Rare diseases are often considered as difficult because of the rare conditions occurs. It’s impossible to prepare for every possible diagnosis, so many nurses further more learning about more common ailments in school and are expected to learn about rare diseases on the job. At times the patient might be the best source of information for the rare conditions to diagnose. Nurses already know that listening to the patient is an invaluable tool to the patients, but in the case of rare disease would be one of the only options available at the onset of care. Rare disease management helping out further for some nurses, however. There have been instances when a rare disease becomes more frequently examined and diagnosed, but nurses are in a unique wide position to advance the knowledge and awareness about rare disease due to their exposure and involvement in medicine.